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The Sister Study

I'm in the Sister Study because I cherish the bond with my sister.

follow-up

Detailed Follow-Up

Regular Sister Study follow-up efforts are ongoing. In an effort to reduce the burden on our study participants, we have changed the schedule of the long-form follow-up questionnaires from every two years (biennial) to every three years (triennial). We will ask you to complete a detailed online or paper follow-up questionnaire. You may also complete the questionnaire by telephone. The follow-up questionnaire updates your health status in more detail than the Annual Health Updates and allows us to ask questions that address new theories about breast cancer. The success of this research effort depends on everyone’s full participation. We are hopeful that with each piece of information you provide, we will be one step closer to discovering the causes of breast cancer and learning ways to prevent this disease. Please continue to help by completing and returning your completed questionnaires promptly.

If you received a request from the Sister Study to complete the current year’s Follow-Up Questionnaire and would like to complete it online, you will need your Sister Study ID and other information that was provided via e-mail or in the materials you received by mail. If you do not have the information you need to get started, please call the Sister Study helpdesk toll-free at 877-4SISTER (877-474-7837) or e-mail us at update@sisterstudy.org and a helpdesk staff person will be happy to help.

Annual Update

Regular Sister Study follow-up efforts are ongoing. Every year, we will send you an Annual Health Update: a quick online or paper questionnaire about changes in your address or health (for example, a diagnosis of breast cancer or a heart attack). We ask you to complete and return it promptly even if there have not been any changes to your health. You may also complete the questionnaire by telephone.

To complete your Annual Health Update online, you will need your Sister Study ID and other information we sent you via e-mail or regular post mail. If you do not have the information you need to get started, please call the Sister Study helpdesk toll-free at 877-4SISTER (877-474-7837) or e-mail us at update@sisterstudy.org and a helpdesk staff person will be happy to help.


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