Special Survey on Breast Cancer Survivorship
In 2011, The Sister Study partnered with the Centers for Disease Control and Prevention to help advance EARLY Act goals. The EARLY Act is legislation passed by Congress in 2010 to advance the awareness and understanding of breast cancer in young women.
As a part of this effort, a special survey of breast cancer survivors focused on the quality of life and other areas of concern for women who have experienced breast cancer diagnosis and treatment. This survivorship survey was sent in the fall of 2012 to Sister Study and Two Sister Study participants diagnosed with breast cancer. The survey included topics such as work-life balance, barriers to healthy behaviors, stress and coping, medical decision-making, treatment-related side effects, and other health and screening issues. Including Two Sister Study cases (prevalent young-onset breast cancer) allowed it to more fully address issues relevant to younger breast cancer survivors such as workplace issues, fertility, and accelerated menopause. In total, 2,537 women participated in this survey for a response rate of 90%.
Questionnaires can be accessed through the links below.
(Requires Adobe Acrobat - Download Here)
Link to questionnaire can be found in the table below. We are currently in the process of making this document Section 508 compliant. If you need assistance before then please please click here to contact us.
Survivorship Survey (PDF 707 KB)
Included questions about method of breast cancer detection, health insurance, medical decision-making, surgery, treatment-related side effects and early treatment cessation, lymphedema, fertility, work-life balance, barriers to healthy behaviors, stress and coping, and other health and screening issues